Look how far she’s come!! We are so proud and so thankful for this precious yet sassy, chatty, independent, fun loving baby girl!! The first picture is when she was having her continuous eeg that lasted 37 hours! I don’t think I ever shared many of them bc well, they are scary looking. I can’t look at any pictures from that week without tears in my eyes. We have never experienced so much emotion, even during Our fertility journey! It was the greatest, scariest week of our lives! The second picture is from yesterday during her neuro check-up!! She sure showed off for Dr. Fequiere! She laid on that table for at least a total of 20 minutes while we were there kicking, squealing, and smiling her heart out!!
Her assessment was perfect! He explained to us that the brain heals very slowly, so she will be on phenobarb for a while. She had basically grown out of her dose already, but she has had no seizure activity. We will actually be increasing her dose based on her weight. We will do a follow-up eeg in 6 months. If he is pleased with how she is developing at 8-9 months we will discuss letting her grow out of her dose at that point. She will more than likely be on the medicine for a year.
We are so thankful for her doctor! We trust him 100%. When we were in the nicu, standing at her bedside, he told us to follow-up in 2 months and it seemed sooooo far away!! Now that seems soooo long ago!
I am still in awe of God’s goodness and grace! He has already used Cora in a big way, she already has an incredible story to tell!! We continue to pray for her healing and development, but as of now, she’s showing no delays! She is actually a little ahead of the game! Thank you all for your continued prayers and support! It literally takes a village! I can’t wait till she understands how much she is wanted and loved!
Our beautiful, chunky girl weighed 13 pounds 2 ounces and was 24 1/2 inches long. (12 weeks old) Thanks for loving her with us!!